Progeria ( Hutchison-Gilford Syndrome)
Just before his passing on January 10, 2014, Sam Berns was a Junior at Foxboro High School in Foxboro, Massachusetts, where he achieved highest honors and was a percussion section leader in the high school marching band. He also achieved the rank of Eagle Scout in the Boy Scouts of America. Sam was diagnosed with Progeria, a rare, rapid aging disease, at the age of 2. He is featured in the Emmy award-winning documentary Life According to Sam, which premiered on HBO on October 21, 2013, 2 days before his 17th birthday. He just turned 17. A few years ago,before his freshman year in High School, he wanted to play snare drumin the Foxboro High School Marching Band, and it was a dreamthat he just had to accomplish. But each snare drum and harness weighed about 40 pounds each, and he have a disease called Progeria . So just to give you an idea,he weigh only about 50 pounds. So, logistically, he really couldn't carrya regular sized snare drum, and because of this the band directorassign...
